Today was an exciting day for us as we launched our shiney new website! This was made possible by the amazing team at AndDigital in Manchester, led by Jamie and Michael, who donated their services for free.

The new website aims to be a place for friends, family, and supporters alike. There is a wealth of medical information for people who are coming to terms with the diagnosis, but also those who need clairification.

There are links to the essential reading ‘What is FOP? A Guidebook for Families’ along with the the ICC FOP Medical Guidelines and the ‘Supporting a child with FOP: a practical guide to their learning journey’.

It also allows us to showcase the most amazing people we know who are living with FOP and making the most of it.

A big thank you to everyone who has contributed to the site, from content to allowing us to share their story. And of course, massive thanks to everyone at AndDigital ~ we’ll be sure to drop cakes off again next time we’re passing!